Sjögren's Archives - Going beyond coping

July 4, 2023

BEST thing I’ve ever found for DRY LIPS

City Lips Plumping lip gloss has been a lifesaver for me. A LOT of people have dry mouth, for a variety of reasons. Having Sjogren’s Syndrome, dry mouth is an issue for me. Sjogren’s...

Adapting

March 8, 2021

When you get to the bottom… don’t forget to look up.

When you get to the bottom, don’t forget to look up. from July 2019 Despondency is something I’ve struggled with now and again since trying a highly regulated orphan drug called Xyrem....

Diet / Fibromyalgia / Narcolepsy / Product Reviews / Supplement

December 27, 2020

Shilajit review. Himalayan Shilajit, FAVE supplement

OK, shilajit = amazing! My criteria for trying a supplement… someone suffering from something similar to me has some gains, and it’s not that expensive. Oh, and I’ve googled “supplement + autoimmune disease” to...

Adapting / Fibromyalgia / Happiness / Live and Learn / Narcolepsy / Sjogrens

January 8, 2020

What happens if I don’t… 16 things I noticed in my year without make-up

What happens if I don’t… 16 things I noticed in my year without make-up What happens if I don’t Wednesday’s are a look into behavior modifications that improved my symptoms. With 9 disorders...

Adapting / Fibromyalgia / Happiness / Live and Learn / Narcolepsy / Sjogrens

September 25, 2019

What happens if I don’t think about my suffering, now or in the past?

Hello sleepy friends, Dawn from Positively Narcolepsy and Going Beyond Coping dot com. Today I want to talk about suffering – physical, mental and/or emotional suffering. It’s something that most people know at...

Happiness / Live and Learn / Random

December 1, 2018

Dose of Positivity for people with chronic illness

As more and more people make their way off Facebook and other social media platforms, I was inspired to create an email list positivity newsletter of sorts to send out positive messages. Do you...

Adapting / Fibromyalgia / Introspection / Live and Learn / Narcolepsy / Sjogrens

April 28, 2018

Killing the Monkey in Your Mind aka Clearing Your Thoughts

Monkey Mind is when your thoughts are so consuming, it feels like the thought Monkeys are running the show. A lot of people with chronic illness have a hard time meditating and therefore can...

Fibromyalgia / Happiness / Live and Learn / Musing / Narcolepsy / Sjogrens

March 10, 2018

Coping through Introspection: A Journey into You, Video series

This Monday, March 12, I’ll be releasing the first video of my series, Coping through Introspection: A Journey into You This is now live 🙂 After 37 years with narcolepsy, two movement disorders, two...

Adapting / Diet / Fibromyalgia / Food / Narcolepsy / Recipe / Sjogrens

July 30, 2017

What the heck is kvass? Inexpensive, homemade probiotic recipe

Who knew some fruit, salt and water could correct lifelong stomach issues? Not me, but I’m glad someone told me about it. Here’s a post about my kvass journey. If you’ve got chronic conditions,...

Adapting / Diet / Fibromyalgia / Food / Live and Learn / Narcolepsy / Sjogrens

July 4, 2017

11 tips for staying on an elimination type diet

Making it through the first 30 days of an elimination type diet is hard enough, what about after? You’re feeling better, how do you stay motivated? After a recent ‘fall from grace,’ I decided...

Tagged: Sjögren’s